Saturday, February 20, 2010

Community and Support

I was in a seminar a couple of weeks ago on utilizing blogs and social networking as tools for selling wine. On the panel of experts was one of the first (and still one of the best) winebloggers Alder Yarrow who writes Vinography: A Wine Blog. The question was how can you tell whether the blog is 'for real'. He said to watch out if the first sentence is "I'm sorry I haven't posted recently but...."


A little guilty here!

I did want to thank Sean and Amy for their kind comments after my last posting. It made me feel that the blog was worthwhile in the greater world, which is not something I expected when I started writing.

I started writing for myself. I was thinking about PKD and the miracles of dialysis and tranplant constantly and needed a personal outlet. The telling turned out to be struggle, untangling the tangled time line of memories, looking through insurance records and even the boys' graduation diplomas to confim dates.

I had no connection, no support throughout the early years of the onset of PKD. That was wayback before the discovery of the Blogo-sphere and the Internet had little to offer other than many pages with the same basic information. I gained ESRD support and connection through my dialysis community that gathered every Monday-Wednesday-Friday at 5 in the morning. While we visited some, we mainly napped. The Facebook connection that Amy had made while I was receiving my transplant was the first contact I had ever had with someone else who was struggling with PKD. 

And so, through 'social networking' our little community has expanded. 

I thank everyone who is part of it for sharing my experience and above all, I thank you for sharing yours.

Love to you all.


  1. Hi David,

    I'm a 25-year-old newlywed and just diagnosed with PKD a couple months ago. PLEASE KEEP WRITING! Your blog has been so helpful in describing what you faced and how you got through it. I appreciate you sharing your story.

  2. Thank you so much for your inspiration. It helped me realize how final this post sounded!

    The finality was not conscious, but as I have read and reread, I was beginning to believe that it was the end of the story.

    As you probably read, my son is just a little older than you and received his diagnosis a year or so ago.