tag:blogger.com,1999:blog-8221974742406865423.post9063614363583659532..comments2023-07-24T07:15:06.767-05:00Comments on Surviving PKD: PKD and 'Fistular' ResponsiblityDavidhttp://www.blogger.com/profile/05425896520724063588noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-8221974742406865423.post-79620129848002729192010-04-03T07:55:30.610-05:002010-04-03T07:55:30.610-05:00I understand first hand the denial of wanting to a...I understand first hand the denial of wanting to accept the fate of dialysis.<br />Reading this takes me back to when Bruce had his port put in for dialysis. It was a PD port in his abdomen, done in a 45 min surgery. It healed and he was on dialysis within a few weeks. By this point he was SO ill that he knew it had to be done ASAP. It was months overdue, but we hung on to any extra days the doctor gave us before requiring the surgery. It was finally done on almost an emergency basis. He dreaded it so much the anxiety took over his life. Once it was in he refused to even look at it in the mirror for months. He felt like a science experiment and the whole thought of it sent him into panic although he knew it was saving his life.<br /><br />I pray you son never has to go though this. Bruce's mom and aunt are both living with PKD and still doing fine. It was ironic that him and his brother's disease progressed so early and at the same time.Hoefling-amyhttps://www.blogger.com/profile/07714395631873752566noreply@blogger.com